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3 months ago
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Rare Diseases South Africa

Rare Diseases South Africa (RDSA), founded in 2013, advocates for awareness, support, and better healthcare for people with rare diseases and congenital disorders in SA.

Category

Health & Wellness
Healthcare & Medical Support
Founded in 2013, Rare Diseases South Africa (RDSA) is a non-profit organisation advocating to ensure that people living with rare diseases and congenital disorders experience greater recognition, support, improved health service and better overall quality of life. Started out of personal need following the diagnosis of the organisation founder, Kelly du Plessis's son, it became evident that there was a lack of awareness and support for rare diseases in general in South Africa.

NPO / NGO / PBO Number

NPO: 120-991 NPC: 2016/071131/08 PBO: 930060119

Physical Address

The Station, 63 Peter Place, Bryanston, Sandton, 2021

Coverage Area

National

Contact Information

Hlumela Tshijila
admin@rarediseases.co.za
0661848465

Social Media

How the Public Can Help

Donate
Fundraise
Volunteer
Funding & Donations: To support patient programs, advocacy, and awareness campaigns. Corporate Partnerships: For sustainable financial and resource support. Medical & Research Support: Collaboration with healthcare professionals and researchers. Awareness & Education: Platforms to educate the public and reduce stigma. Volunteer Support: Skilled volunteers for events, admin, and community engagement. Technology & Tools: CRM systems, digital platforms, and IT infrastructure.

Admin & Management

Date Organisation Was Established

2013

Organisation Structure

Non-Profit Organisation
Public Benefit Organisation
Rare Diseases South Africa
Member since: 3 months
admin@rarediseases.co.za
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0661848465
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